Isabel has been dying to get out of the house and always cries when we get home! It's so sad. So Friday we took the girls out to feed the ducks and then stopped by the library on the way home.
Let me tell you about those crazy ducks! They were HUNGRY! There was tons of them and as soon as we started tossing bread they were surrounding us from all directions and a bunch were standing right at our feet.
Cori kept walking around with a piece of bread hanging out of her hands and she was lucky to only get pecked a couple of times. Those little black ducks were chasing her around!
P.S. I just love their new jackets and yes, even though we live in San Diego they have been able to wear them a couple of times!
Saturday, November 19, 2011
Thursday, November 10, 2011
Why does God create severely handicapped children?
This is probably the most beautiful thing I have read in a long time, or maybe ever. I wanted to post it in memory of our friend, Aiden, who passed away yesterday. He had SMA type 1 just like Isabel. Isabel is no stronger than Aiden was and it just really reminds us how fragile Isabel's life is and how lucky we are for every second we get to spend with her on this earth.
Why does God create severely handicapped children? By Aron Moss
Question:A friend gave birth to a baby with a rare condition that has rendered her severely handicapped. She is not expected to live much past her tenth birthday. I just can't understand why God does that. If life has a purpose, what is the purpose of such a short and sad life?...
Answer:Every birth is a gamble. A soul enters the world innocent and pure. But it may not stay that way. This world is a maze of diverging pathways, both good and evil, and the choice is ours which way we go. Once a soul enters a body, it is free and therefore vulnerable to corruption. While acts of good elevate the soul, every act of evil makes a blemish on the soul.Some souls are so lofty, it simply isn't worth the gamble. These souls are too precious to risk being compromised by life in a body. They are too high to come down to this world. But the other option, not to be sent down at all, to never reach this world, would mean that we would miss out on meeting these holy and lofty souls and hearing their message.So these souls do come down. But in order to be protected from the potential evils of an earthly existence, they are sent down into a body that will not compromise their holiness. They enter this world in a form that is above sin, above evil. From a purely physical perspective we call them "disabled" or "handicapped"; from the perspective of the soul they are protected. They will never sin. Their sojourn in this world is often brief, and in terms of this world may seem sad. But they have retained their purity. And they have fulfilled their mission.These special souls remind us that true love doesn't need a reason. We often love others for what they give us -- we love our children because they are cute, smart, and high achievers; we love our spouse for the pleasure and contentment they give us; we love our parents because they care for us. This is love, but it is not pure.When a child is born that will never achieve worldly success, cannot provide the usual source of pride for her parents, all extraneous reasons to love her fall away and what's left is the purest love that there can be. These children are lovable not because of what they do for you, and not because of what they will one day become, but simply because they are.These pure souls remind us what love should be. Only such a pure and holy soul can elicit such a pure and holy emotion. We can only stand in awe of them, and the parents and friends who care for them. And we can only thank them all, for giving us a glimpse of what true love really means.
Tuesday, August 2, 2011
Oops!
Isabel was scheduled to have a couple of procedures done in the OR last week. She needed to have a hearing test that can only be done under anesthsia and she also needed her 4 top front teeth pulled. They are all loose and because she cannot protect her airway we don't want to risk having her teeth come out on their own and go into her lungs. That would obviously not be good. And she hates when I try to wiggle them so the plan was just to pull them real quick while she was out for the hearing test. We got her all ready, went back to pre-op and found out that I messed up on the feeding instructions and they couldn't do the anesthsia! So we spent about 4 hours at the hospital for nothing and we'll have to go back again in a few weeks.
At least we got to hang out with daddy, watch tv, and take a little walk while we were there.

Hiking
Park Time!
Subscribe to:
Posts (Atom)