This a beautiful video about a family whose son has SMA type1. Our daughter, Isabel, also has SMA type1 and has a lot of the same challenges as this little boy. I can only imagine how hard it was for this family to open up about this disease. They did it in hopes of raising awareness for SMA research. These children that are affected by SMA truely are angels and I am blessed to have one of those angels as my daughter. Everyday, even though she can't smile, I can see in her her face how truely happy she is. She has always had the sweetest little spirit. I am so blessed to be her mother and am grateful for everyday I get to spend with her.
fightsma.org and fsma.org have lots of infomation about the disease and what we can all do to help find a cure.
